Dedicated in the name of Ada Keshishiants, who suffers from a life-threatening, rare genetic disease called Spinal Muscular Atrophy (SMA) Type 1. To learn more about this deadly disease, please visit here. Children with SMA die slowly, rarely reaching two years of age. One shot of Zolgensma could have helped treat or even cure Ada, but at a cost of $2.125 million. In 2021, the funds were raised to purchase Zolgensma, but complications arose, and unfortunately, Ada was not able to receive the treatment.
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